Person Centred Care needed to Transform a Service?

Monday was my first time at an ALLIANCE Annual Conference and I certainly enjoyed myself and found the day to be really interesting and useful.

There was one thing that stood out for me from the day. I attended the “What does it take to transform a service?” workshop. One of the services highlighted was about the Ins:PIRE project up at the GRI which is a support programme for the 5 week period after someone has been treated in Intensive Care. One the users of the programme who featured in the video shown has had an ileostomy formed after surgery and he was having difficulties getting the colostomy bags to stay on and their leaking was causing him to lose confidence about leaving his house. However, as a result of the Ins:PIRE project being there he was able to go back to the hospital and get the help he needed to sort things out.

This really resonated with me as after I has surgery to have a temporary ileostomy a couple of summers ago I had exactly the same problem with colostomy bags not sticking. I had been housebound as a result of my severe Ulcerative Colitis so I had gone for surgery to remove my colon and hopefully reduce the impact of the symptoms of UC and allow me to lead a “normal” life. However, when I started having problems with my colostomy bags leaking it really knocked my confidence and I became a near recluse again given that there had been times when the bags had leaked in public and I had a torrid time cleaning the mess up. Having been through one major surgery I was desperate to try to get out and about and enjoy the Scottish “summer” before I went back at the end of summer to get what was left of my insides reconnected so going back to being housebound was not what I’d expected.

At the time I didn’t know who to turn to: was it my GP, the IBD ward at the hospital that I’d had the surgery at, the stoma nurse or the colostomy bag suppliers? Eventually I was able to be put in contact with the stoma nurse at the local hospital, which was not the hospital I’d had the surgery at, but we were able to try various things to reduce the problem which worked to a certain extent but I was able to struggle through until the operation to reconnect me.

Had there been a service like the Ins:PIRE project in place at both the hospital and time that I was having the problems then I might have felt better able to raise the problem with someone and hopefully find a solution. Having been quite seriously ill and then had major surgery my confidence at the time was very low so I felt that I was being a hassle to the people that I was contacting to try to get help. The Ins:PIRE project was able to help the gentleman in the video shown at the workshop and I was glad to hear that such things were in place, albeit not yet yet rolled out across Scotland.

Voice of Experts

I was delighted to be invited to the ALLIANCE’s annual conference celebrating the 10th birthday of this tremendous organisation. As a representative for The Spark Counselling – a leading third sector provider of counselling and relationship support services – we recognise the vital importance of the ALLIANCE. Shaping and influencing the agenda for those with disabilities, those with long term conditions and their unpaid carers has never been so critical in Scotland. Read More “Voice of Experts”

2MExperts Workshop Overview – Medicines; levelling the playing field

One delegate at the 2 Million Expert Voices conference expressed her frustration with the communications skills of clinicians:

“If you don’t know what’s wrong with you it is hard to find out from doctors and surgeons. They have a language all of their own. They went to medical school for seven years to learn this language. To have any idea what they are saying I would have to spend a week with a pile of medical dictionaries. They need to tell me in my language not theirs.” Read More “2MExperts Workshop Overview – Medicines; levelling the playing field”

National Conversation on a Healthier Scotland – South Lanarkshire

The ALLIANCE and Voluntary Action South Lanarkshire would like to invite you to a Conversation Café hosted in partnership with the Health and Social Care Academy.

This pop up café will be held in the Town House, Hamilton on 1 February 2016 at 10am arrival for a 10.30am start until 12.30pm.

The conversation café is an opportunity for citizens to engage with each other and share their views on:

  • What is needed to help you live well in the future?
  • What support do we need in Scotland to live healthier lives?

Following the Cabinet Secretary’s announcement at our recent Citizen Wellbeing Assembly of a National Conversation on creating a healthier Scotland, the café will provide an opportunity for constructive conversations around health and wellbeing which will form part of a dialogue on the future of health and social care in Scotland.

The ALLIANCE is committed to working with Scottish Government to ensure that all voices are heard, especially seldom heard voices and those of people with lived experience. Your views matter and are key to the conversation. This is the first of a series of events across Scotland to give a voice to those who use support and services.

Please help us share details of this event.  If you are interested in attending and contributing, please register with Eventbrite to confirm your place or call 0141 404 0231.

National Conversation on a Healthier Scotland – Midlothian

Cafe Connect host the National Conversation for a Healthier Scotland

Tuesday 26 January 2.30pm – 4pm (tea, coffee and chat from 2pm)
@ Dalkeith Older People’s Welfare Hall, St Andrew’s Street, Dalkeith

Forward MID and The ALLIANCE would like to invite you to come to Cafe Connect and join in with a Conversation Café hosted in partnership with the Health and Social Care Academy.

The conversation café is an opportunity for citizens to engage with each other and share their views on:

  • What is needed to help you live well in the future?
  • What support do we need in Scotland to live healthier lives?

The café will provide an opportunity for conversations around health and wellbeing and the future of health and social care in Scotland.

The ALLIANCE is working with Scottish Government to ensure that all voices are heard, especially seldom heard voices and those of people with lived experience. Your views matter and are important to this national conversation.

Café Connect is a vibrant community café run by Forward Mid. It gives disabled people a chance to meet up to talk and listen. Café Connect is a great place to find out useful information about a whole range of relevant supports and services; Welfare Reform, Access Issues, Self- Directed Support; a friendly gathering where everyone is welcome; a place where you can listen in, share your story, or just turn up for a coffee, tea and cake on the house!

Please help us share details of this event.  If you are interested in attending, contact us by calling 0141 404 0231, emailing Laura.McCulloch@alliance-scotland.org.uk or just turn up on the day, everyone is very welcome.

Five Provocations for the Future of Health and Social Care

Following our Think Tank on creating wellbeing in October, we are delighted to be able to share this graphic report setting out our five provocations for the future of health and social care. The Think Tank brought together leaders from across Scottish society to discuss the question “What is needed to transform Scottish society so that all citizens are able to thrive?” Having analysed the discussions, five themes emerged: Courageous leadership; Nurturing transformation; Emphasising humanity, values and flourishing; Target culture and Ceding power.

Click here to download the graphic report.

Read More “Five Provocations for the Future of Health and Social Care”

Video: Academy Think Tank

On 27 October 2015, the Health and Social Care Academy hosted a Think Tank on the theme “Creating wellbeing: what is needed to transform Scottish society so that all citizens are able to thrive?” The video below provides an overview of the day and features interviews with some of the contributors.

Thank you to the University of the West of Scotland’s journalism students for this footage.

National Conversation on a healthier Scotland – Edinburgh

The ALLIANCE and Edinburgh Third Sector Interface would like to invite you to a Conversation Café hosted in partnership with the Health and Social Care Academy.

This pop up café will be held in the Norton Park Conference Centre, Edinburgh on 25 November, 9.30am – 12 noon.

The conversation café is an opportunity for citizens to engage with each other and share their views on:

• What is needed to help you live well in the future?
• What support do we need in Scotland to live healthier lives?

Following the Cabinet Secretary’s announcement at our recent Citizen Wellbeing Assembly of a National Conversation on creating a healthier Scotland, the café will provide an opportunity for constructive conversations around health and wellbeing which will form part of a dialogue on the future of health and social care in Scotland.

The ALLIANCE is committed to working with Scottish Government to ensure that all voices are heard, especially seldom heard voices and those of people with lived experience. Your views matter and are key to the conversation. This is the first of a series of events across Scotland to give a voice to those who use support and services.

To register to attend please click here. 

Is a butterfly a transformation or a better caterpillar?

Is it possible that a preoccupation with improvement science is getting in the way of efforts to genuinely transform our approach to health and social care provision in Scotland?

This question was prompted for me by attending the recent Health and Social Care Academy Think Tank on Creating Wellbeing. Our task was to discuss: “What is needed to transform Scottish society so that all citizens are able to thrive?” Fairly quickly we got on to the progress achieved in different areas of Scottish public service through the implementation of what has become known as ‘improvement science.’ This, it was suggested, was our best tool for achieving the transformational change we were invited to discuss.

Read More “Is a butterfly a transformation or a better caterpillar?”

National Conversation on a healthier Scotland – Glasgow

National Conversation on a healthier Scotland

The ALLIANCE and Glasgow Third Sector Interface would like to invite you to a Conversation Café hosted in partnership with the Health and Social Care Academy.

This pop up café will be held in the Albany Learning Centre on 23 November 2015, 1.30pm – 4.30pm.

The conversation café is an opportunity for citizens to engage with each other and share their views on:

  • What is needed to help you live well in the future?
  • What support do we need in Scotland to live healthier lives?

Following the Cabinet Secretary’s announcement at our recent Citizen Wellbeing Assembly of a National Conversation on creating a healthier Scotland, the café will provide an opportunity for constructive conversations around health and wellbeing which will form part of a dialogue on the future of health and social care in Scotland.

The ALLIANCE is committed to working with Scottish Government to ensure that all voices are heard, especially seldom heard voices and those of people with lived experience. Your views matter and are key to the conversation. This is the first of a series of events across Scotland to give a voice to those who use support and services.

Please help us share details of this event.  If you are interested in attending and contributing, please register with Eventbrite to confirm your place or call 0141 404 0231.